As a result of my own misdiagnosis and some of the experiences I have detailed in this blog, as a web and app developer, I decided some time ago to address some of the issues I faced trying to unravel what was going on, to help others who may be in a similar position.
The result: my company Internetics has launched a global directory of medical misdiagnoses, myMisdiagnosis. Please check it out.
It’s an important initiative – for example, a study of US medical diagnostic data, published in the Medical Journal of Australia, suggests that up to 1 in 7 medical diagnoses could be wrong.
And in a separate study from The John Hopkins University reports that 1 in 3 cases of misdiagnosis results in severe injury or death.
It is also suggested that medical errors are the third leading cause of death, with heart disease and cancer in the top slots.
Those stats are shocking – and given the lack of patient-orientated data and misdiagnosis awareness – I realised there was a need to create something to address those issues.
To encourage more discussion between specialists and patients. To inform, to educate. But unfortunately, what’s out there from a patient perspective, is hard to find or difficult to interpret.
The site is free to all, and you can search for diagnoses, misdiagnoses or various symptoms – allowing users to traverse a wealth of data.
We are also encouraging patients to add their own experiences to the system. Their information could potentially assist others around the world.
Please visit the site myMisdiagnosis, and I’d love to get your feedback.